Luciana Wulkan is a seven-year-old girl who lives a happy life in Bolton, England. However, unlike most young girls, she is affected by Fibrodysplasia Ossificans Progressiva, an extremely rare genetic condition that affects just 450 people worldwide. The Girl Whose Muscles Are Turning To Bone is a window into Luciana's world and is a film about an extraordinary girl, not about her disability.